Wednesday, March 28, 2012

Education Week: Learning With Asperger's: A Parent's Perspective

Education Week: Learning With Asperger's: A Parent's Perspective

Imagine a world that goes something like this: To succeed according to societal norms of success, you must learn to do some things that are impossible. Yes, that's right, I said impossible. And yet, somehow, you attempt the challenge because, after all, it's the only way to succeed according to societal norms. And we all know how important success is.
To earn an A in English class, you must verbally deconstruct the symbolism in Robert Frost's poem "Mending Wall" while your house is on fire and collapsing around your ears. C'mon, ignore the flames and the ceiling caving in and speak up! I can't he-e-a-a-r you! Did I mention that everyone else around you is safe and sound, curled up in blankies with hot cocoa, and never a thought of a burning house? They're doing fine, so get with the program.
To earn a B in math class, you must explain in writing precisely how you came by all of your correct answers—Show your work!—while plunging off a 100-foot cliff without a parachute. C'mon, don't let a little breeze past your ears distract you from the larger purpose here. Oh yes, and everyone else around you? They are sitting safely on porch swings, dangling their legs happily as you fall.
—iStockphoto.com/Bodhi Hill
To earn a decent grade in science class, you must participate with others in a lab (and confront the Bunsen burner glaring at you), and must write the lab partners' names in full on the report, while you're struggling up the face of Mount Everest, breath heavy, legs burning, toes succumbing to frostbite. And all of your classmates? You guessed it—they're lounging in a hot tub in the Caribbean.
Are you in a wheelchair? To graduate from high school, we expect you to climb the front steps on your own two feet ... 20 times. Without falling. And don't come whining to us about needing a ramp or a railing! If we did that for you, we'd have to do it for everyone, and you can see how unreasonable that would be. Pleeaasse. Enough of the excuses already.
Are you blind? You must take a visual arts class and be able to capture on paper perspective, color, shading, shape, and emotional depth. You will do so first in pen and ink, then in watercolor, and finally through photography and film. No, of course we won't allow you to create three-dimensional models or find an alternative approach to the assignment!
OK, stop. Is your stomach in knots yet? Do you feel as if you've landed in a dystopian universe where basic human needs and common-sense decency are no longer standards to live by?
"What I know ... is that inside my son, there's a fire raging every time he's asked to do something on this alien planet called school."
Guess what? This scenario is precisely what we ask our students with Asperger's syndrome (commonly referred to as a type of high-functioning autism) to do every single day of their lives in K-12 schools across the country. Hey, it's a social world out there, and you'd better learn to play the game by the same rules as everyone else. Right?
I have watched my brilliant 16-year-old son write entire hard-rock albums to capture nuances of character and theme in a complex Shakespearean work, yet earn barely a B on an oral presentation about Edgar Allan Poe.
I have seen him get perfect answers in math, only to lose many points for not "showing" the work adequately. (In elementary school, the start of the math troubles, he was sent back from the math enrichment classroom because he kept showing up without a pencil.) I have seen him freak out over tests based exclusively on corrected homework—that somehow didn't manage to stay with his notebook, thereby earning him that toxic zero. Never mind the points lost for the disastrous notebook itself. (And this for a kid who was solving square roots in his head at the age of 5. Nowadays? "I can't do math," he tells me. What I tell him is that he's perfectly capable of doing "math"—he just doesn't "do school" as well.)
I have watched my son get a D on a science lab because he couldn't express enough details, had too many crossed-out errors in his lab report, and didn't list the full names of his lab partners.
And on and on and on. And on. The moments make me cry. But they make my son despair, disengage, melt down, care too much, or stop caring entirely. And I think, this is what we do to children? To brilliant, kind, compassionate, gentle children? All in the name of success?
See Also
See related Commentary:
I Am a Twice-Exceptional Student
What I know—because parents know, trust me—is that inside my son, there's a fire raging every time he's asked to do something on this alien planet called school, that he's falling off cliffs and climbing mountains every single moment of every single day of his educational programming. Not to mix too many metaphors, but sometimes all of this is happening inside him all at once. And it freaks him out. It. Freaks. Him. Out. But guess what—he's learned to try to hide his freakouts because they just freak out everyone else. So he has learned to react as "normally" as he can, given the circumstances.
Remarkably, and precisely how I can't begin to know, he has learned in his 10-plus years of schooling that he is supposed to ignore the flames, simply face up to the falling, keep on climbing even with no breath or energy to do so—if he is to succeed like everyone else around him. And he's smart enough to know that no one else seems to have these fires raging and free-falls happening, and he can't explain what this feels like. He can only take yet another low mark for "group participation," "eye contact," "presentation," "neatness," "organization," and try not to fall apart at the seams. (And space is too limited to begin to address the traumas of lunchroom, recess, pep rallies, substitute teachers, bells, fire drills, field trips, and bus rides.)
We have asked our "Aspies" to try to "figure out" the way school functions for too long. What would it take for the rest of us to try to "figure out" the way kids with Asperger's function? What would it take to put a few ramps and railings in place, to find alternative assessments, to speak gently to these gentle souls and ask them what the world feels like to them? It's not that difficult, honestly. And the gifts we uncover might astound us.
Vol. 31, Issue 26, Pages 26-28
Related Stories

Monday, March 12, 2012

Next Steps into Adolescence

Center for Autism Research
Next Steps into Adolescence
A Workshop for Parents, Caretakers, and Professionals Supporting Children with an Autism Spectrum Disorder who are Approaching Adolescence

Where:
3535 Market Street
16th Floor
Room B
Philadelphia, PA 19104

Driving Directions

When:
Thursday April 5, 2012 from 8:30 AM to 3:00 PM EDT
Add to my calendar
 
As children approach and enter the teen years, they must deal with physical growth spurts, mindboggling hormone releases, and ever-changing and challenging social relationships.  Children begin to care about being "cool," and classmates may no longer be as tolerant. For pre-adolescent children with ASD, these already complicated physical and social changes are compounded by the typical ASD-difficulties of reading social cues and understanding the behaviors of others. Consequently, children with ASD approaching adolescence have greater transition needs than most typically developing pre-teens. 

By the end of elementary school, parents begin to look toward the future. They begin to think about what their children will be when they "grow-up" and worry if their children will ever "catch-up" academically and socially. Other concerns arise from the facts we know - preadolescence is a time children can develop seizures, have greater trouble sleeping, and are faced with greater academic demands at school.  All in all, the transition into adolescence is a difficult one and a time when many families realize ASD is a life-long disability, that will require a life-time plan.
 
  • Presenters will include experts in the field of autism, including psychology, behavior, medicine, and social work
  • You will participate in a panel with family members of adolescent children on the autism spectrum
Cost: $25 for parents/guardians, $45 for professionals, $75 for professionals with continuing education credits* includes Resource CD, coffee, tea, and assorted beverages.   

* Continuing education credits in Psychology, Social Work, Nursing, and Act 48 are pending approval of appropriate boards.   

In order to keep costs low, lunch with NOT be provided. We ask that all participants pack and bring their lunch. Alternately, a light assortment of soups, sandwiches, and salads are available for purchase in the 16th floor cafeteria, and there are several lunch carts in front of the 3535 building.

Price does not include parking. For directions and parking options, please visit: http://www.centerforautismresearch.com/directions/directions_to_car   

To register online, please click the "Register Now" button below.

To register by mail, please click "Get more information." Then print, complete, and return the paper registration form, along with your $25, $45, or $75 check or money order. Checks may be made out to "The Children's Hospital of Philadelphia" with "Center for Autism Research" in the memo line.

Monday, March 5, 2012

Teen/Young Adult Group



Meetup
This Sunday

Teen/Young Adult Group currently functioning-looking for new members

ASCEND Group

Sunday, March 11, 2012
3:00 PM

Home of Nancy Kleinberg and David Loewenstein
506 Conshohocken State Rd
Narberth, PA 19072

Will you attend?
10 Parents of Children with Autism going, including:
I think this is a great way to meet other parents of children on the spectrum and...
I live in Narberth and Administer a Nursing Home. Have 3 kids. David is 19, bright,...
We are always looking for support in helping us do our best for our daughter who...
My son is 12 years old and has Asperger's Syndrome. He is very bright and friendly....
Have a teenage son with Asperger's and always looking for additional info/support/socialization...
Young people 17-23, parents welcome. Ongoing social group with various activities, such as Dave and Busters, a pool party, but mainly just getting together. Been meeting for about a year and a half. There's a core group, but new people are always...
Learn more

Mar
17
Buddy Club Bowling at 2:00 p.m.
Saturday, March 17, 2012 2:00 PM
RSVP
Mar
17
Buddy Club Bowling at 2:00 p.m.
Saturday, March 17, 2012 2:00 PM · 2 attending
RSVP
Apr
21
Buddy Club Bowling at 2:00 p.m.
Saturday, April 21, 2012 2:00 PM · 2 attending
RSVP

Sunday, March 4, 2012

Teen/Young Adult Group

New Meetup
ASCEND Group
Added by Nancy Kleinberg
Sunday, March 11, 2012
3:00 PM
Home of Nancy Kleinberg and David Loewenstein
506 Conshohocken State Rd
Narberth, PA 19072
Will you attend?
2 Parents of Children with Autism going, including:
I live in Narberth and Administer a Nursing Home. Have 3 kids. David is 19, bright,...
My son is 12 years old and has Asperger's Syndrome. He is very bright and friendly....
Young people 17-23, parents welcome. Ongoing social group with various activities, such as Dave and Busters, a pool party, but mainly just getting together. Been meeting for about a year and a half. There's a core group, but new people are always...
Learn more

Mar
17
Buddy Club Bowling at 2:00 p.m.
Saturday, March 17, 2012 2:00 PM · 3 attending
RSVP
Mar
17
Buddy Club Bowling at 2:00 p.m.
Saturday, March 17, 2012 2:00 PM · 2 attending
RSVP
Apr
21
Buddy Club Bowling at 2:00 p.m.
Saturday, April 21, 2012 2:00 PM · 2 attending
RSVP

Wednesday, February 29, 2012

fINDING a home/The Right to work



Are you or a loved one preparing for adulthood?

We have some great information on residential options and employment just for you! The Autism Society is offering two past issues of the Autism Advocate, the Autism Society's membership magazine. For your gift of $25 or more by March 6, we will send you the following two titles of the Autism Advocate magazine and two Autism Society puzzle ribbon magnets:

Finding a Home Advocate Cover
Finding a Home, Residential Options for Individuals on the Spectrum

Regardless of the age of your loved one on the autism spectrum, it is important to begin to think about future living options. The articles in this issue can provide some helpful suggestions and assist you in creating a vision for an individual’s future. Topics include what to look for in residential services, architectural issues to consider when designing spaces for those on the spectrum, residential options, and more.

The Right to Work, Creating Integrated Employment Outcomes

The Right to Work, includes articles about federal and state government employment efforts and success stories from companies that are taking the lead in hiring individuals with autism. Read this article by an entrepreneur in Denmark who is taking his business model global to enable the creation of one million jobs around the world for people with ASD and similar challenges.

Summer Advocate
Autism Society Awareness Magnets

We will also send you two puzzle ribbon magnets, perfect for a refrigerator, locker or your car!

Please DONATE today to receive these two issues! Thank you for supporting the Autism Society.

Sincerely,

Your Friends at the Autism Society


as summer tips donate now button
Standard Tell a Friend Button

Wednesday, February 22, 2012

Autism Conference- Building Bridges

Autism Logo
Registration Includes:
- Breakfast
- Lunch
- Keynote Speech
- Workshops
- Exhibit Hall
- Children's Program
- Networking
- Vast Resources
- ACT 48 & APA Credits (if applicable)
Our Sponsors
Conference Postcard
Keynote Sponsor
IBC Logo
Keynote Speaker
Dr. Peter F. Gerhardt
 Peter F. Gerhardt, Ed.D.
Chair of the Scientific Council for the Organization for Autism Research

Conference Postcard Front

Register for one of the region's most prominent autism conferences

Green Tree Partnerships and La Salle University announce the 6th Annual Autism Conference

The Green Tree/La Salle conference is one of the largest, most highly regarded & prestigious autism conferences in the region for individuals with autism, their families & professionals who treat & provide support to this community. 

Event Details
Building Bridges: Supportive Practices from Birth to Adulthood
Date: May 4, 2012
Time: 8:00 am - 3:00 pm
Place: Student Union Building, La Salle University, 1900 West Olney Avenue, Phila.
Cost: $40 Students/Parents; $80 All Others

How to Register:
Phone: (609) 518-1259
Fax: (609) 518-1283
Mail: Autism Conference, C/O Event Mood, Corp., P.O. Box 321, Lumberton, NJ 08048

Who Should Attend
Parents and grandparents of children with autism
ASD children ages six and up and their siblings
Advocates
Caregivers
Community Leaders and Stakeholders
Healthcare Professionals
Doctors
Psychologists
Teachers
Therapists
People who want to learn more about Autism Spectrum Disorders among others

Click Image for Exhibitor Form
Exhibitors Wanted
Promote Your Products and Services

Do you offer products and services that support the autism community?
Would you like direct access to this target market? If so, we invite you to exhibit and get positive exposure at the 6th Annual Autism Conference on May 4, 2012

Previous Exhibitors: $125
New Exhibitors: $175

We provide:
- 6ft table displaying your information or products
- Table cloth
- Chairs
- Opportunity to promote your products and services
- Marketing opportunities
 
Sponsorship opportunities are also available. We invite you to join other companies such as Independence Blue Cross, among others, who have supported this annual conference and the autism community!
Click for advertising form
Advertisers Wanted
Make an even greater and longer lasting impression

Advertise in the 2012 Conference Program Book. This book is a pertinent resource guide that provides information about the various services available to this community. 

Program Book Specifications:
Book Size: 5.5w by 8.5h
Full Color
Deadline: April 4, 2012 (Send ads as jpg or pdf files)

- Full Page $250 (4.5w by 7.5h)
- Half Page $150 (4.5w by 3.5h)
- Qtr Page $100 (4.5w by 1.75h or  2.125w by 3.5h)
- Biz Card $75 (2.125w by 1.75h)

For more information, contact:
Lavinia Awosanya
Event Mood, Corp.
(609) 518-1259

Send ads by April 4 to conference@eventmood.com. 
This email was sent to wirthedu@aol.com by lavinia.awosanya@gmail.com |  
Event Mood, Corp. | P.O. Box 321 | Lumberton | NJ | 08048