Friday, March 30, 2012

2012AgencyNight.

Thursday, May 3, 2012
6:30-8:30 pm
Norristown Area
Senior High School Cafeteria
1900 Eagle Drive, Norristown, PA 19403
Speaker Beginning at 6:30
Michael Fiore~The Sierra Group
Reaching your boiling point: How
adaptive tools can power the
college experience.
Check out how tools such as the iPad, Kindle Fire,
GoToMeeting, Livescribe Pen, DropBox, YouTube,
and iGoogle are transforming the way students
with adaptive needs access the lessons and
supports that they need while at college. See
practical examples with real-life academic
scenarios in this high energy technology and
assistive technology overview.
Following the speaker
The Resource Fair will be open!
Representatives from the following areas
will be available to provide information
and to answer your questions.
Advocacy Groups
Community Resources
Postsecondary Education
Recreation and Leisure
Employment/Day Programming
For more information or to register: Jacki Lyster,
MCIU Training and Consulting 610-755-9393
jlyster@mciu.org
Transition
to
Adult Life
Agency
Information
Night
For families and students with special
needs

Wednesday, March 28, 2012

Education Week: Learning With Asperger's: A Parent's Perspective

Education Week: Learning With Asperger's: A Parent's Perspective

Imagine a world that goes something like this: To succeed according to societal norms of success, you must learn to do some things that are impossible. Yes, that's right, I said impossible. And yet, somehow, you attempt the challenge because, after all, it's the only way to succeed according to societal norms. And we all know how important success is.
To earn an A in English class, you must verbally deconstruct the symbolism in Robert Frost's poem "Mending Wall" while your house is on fire and collapsing around your ears. C'mon, ignore the flames and the ceiling caving in and speak up! I can't he-e-a-a-r you! Did I mention that everyone else around you is safe and sound, curled up in blankies with hot cocoa, and never a thought of a burning house? They're doing fine, so get with the program.
To earn a B in math class, you must explain in writing precisely how you came by all of your correct answers—Show your work!—while plunging off a 100-foot cliff without a parachute. C'mon, don't let a little breeze past your ears distract you from the larger purpose here. Oh yes, and everyone else around you? They are sitting safely on porch swings, dangling their legs happily as you fall.
—iStockphoto.com/Bodhi Hill
To earn a decent grade in science class, you must participate with others in a lab (and confront the Bunsen burner glaring at you), and must write the lab partners' names in full on the report, while you're struggling up the face of Mount Everest, breath heavy, legs burning, toes succumbing to frostbite. And all of your classmates? You guessed it—they're lounging in a hot tub in the Caribbean.
Are you in a wheelchair? To graduate from high school, we expect you to climb the front steps on your own two feet ... 20 times. Without falling. And don't come whining to us about needing a ramp or a railing! If we did that for you, we'd have to do it for everyone, and you can see how unreasonable that would be. Pleeaasse. Enough of the excuses already.
Are you blind? You must take a visual arts class and be able to capture on paper perspective, color, shading, shape, and emotional depth. You will do so first in pen and ink, then in watercolor, and finally through photography and film. No, of course we won't allow you to create three-dimensional models or find an alternative approach to the assignment!
OK, stop. Is your stomach in knots yet? Do you feel as if you've landed in a dystopian universe where basic human needs and common-sense decency are no longer standards to live by?
"What I know ... is that inside my son, there's a fire raging every time he's asked to do something on this alien planet called school."
Guess what? This scenario is precisely what we ask our students with Asperger's syndrome (commonly referred to as a type of high-functioning autism) to do every single day of their lives in K-12 schools across the country. Hey, it's a social world out there, and you'd better learn to play the game by the same rules as everyone else. Right?
I have watched my brilliant 16-year-old son write entire hard-rock albums to capture nuances of character and theme in a complex Shakespearean work, yet earn barely a B on an oral presentation about Edgar Allan Poe.
I have seen him get perfect answers in math, only to lose many points for not "showing" the work adequately. (In elementary school, the start of the math troubles, he was sent back from the math enrichment classroom because he kept showing up without a pencil.) I have seen him freak out over tests based exclusively on corrected homework—that somehow didn't manage to stay with his notebook, thereby earning him that toxic zero. Never mind the points lost for the disastrous notebook itself. (And this for a kid who was solving square roots in his head at the age of 5. Nowadays? "I can't do math," he tells me. What I tell him is that he's perfectly capable of doing "math"—he just doesn't "do school" as well.)
I have watched my son get a D on a science lab because he couldn't express enough details, had too many crossed-out errors in his lab report, and didn't list the full names of his lab partners.
And on and on and on. And on. The moments make me cry. But they make my son despair, disengage, melt down, care too much, or stop caring entirely. And I think, this is what we do to children? To brilliant, kind, compassionate, gentle children? All in the name of success?
See Also
See related Commentary:
I Am a Twice-Exceptional Student
What I know—because parents know, trust me—is that inside my son, there's a fire raging every time he's asked to do something on this alien planet called school, that he's falling off cliffs and climbing mountains every single moment of every single day of his educational programming. Not to mix too many metaphors, but sometimes all of this is happening inside him all at once. And it freaks him out. It. Freaks. Him. Out. But guess what—he's learned to try to hide his freakouts because they just freak out everyone else. So he has learned to react as "normally" as he can, given the circumstances.
Remarkably, and precisely how I can't begin to know, he has learned in his 10-plus years of schooling that he is supposed to ignore the flames, simply face up to the falling, keep on climbing even with no breath or energy to do so—if he is to succeed like everyone else around him. And he's smart enough to know that no one else seems to have these fires raging and free-falls happening, and he can't explain what this feels like. He can only take yet another low mark for "group participation," "eye contact," "presentation," "neatness," "organization," and try not to fall apart at the seams. (And space is too limited to begin to address the traumas of lunchroom, recess, pep rallies, substitute teachers, bells, fire drills, field trips, and bus rides.)
We have asked our "Aspies" to try to "figure out" the way school functions for too long. What would it take for the rest of us to try to "figure out" the way kids with Asperger's function? What would it take to put a few ramps and railings in place, to find alternative assessments, to speak gently to these gentle souls and ask them what the world feels like to them? It's not that difficult, honestly. And the gifts we uncover might astound us.
Vol. 31, Issue 26, Pages 26-28
Related Stories

Monday, March 12, 2012

Next Steps into Adolescence

Center for Autism Research
Next Steps into Adolescence
A Workshop for Parents, Caretakers, and Professionals Supporting Children with an Autism Spectrum Disorder who are Approaching Adolescence

Where:
3535 Market Street
16th Floor
Room B
Philadelphia, PA 19104

Driving Directions

When:
Thursday April 5, 2012 from 8:30 AM to 3:00 PM EDT
Add to my calendar
 
As children approach and enter the teen years, they must deal with physical growth spurts, mindboggling hormone releases, and ever-changing and challenging social relationships.  Children begin to care about being "cool," and classmates may no longer be as tolerant. For pre-adolescent children with ASD, these already complicated physical and social changes are compounded by the typical ASD-difficulties of reading social cues and understanding the behaviors of others. Consequently, children with ASD approaching adolescence have greater transition needs than most typically developing pre-teens. 

By the end of elementary school, parents begin to look toward the future. They begin to think about what their children will be when they "grow-up" and worry if their children will ever "catch-up" academically and socially. Other concerns arise from the facts we know - preadolescence is a time children can develop seizures, have greater trouble sleeping, and are faced with greater academic demands at school.  All in all, the transition into adolescence is a difficult one and a time when many families realize ASD is a life-long disability, that will require a life-time plan.
 
  • Presenters will include experts in the field of autism, including psychology, behavior, medicine, and social work
  • You will participate in a panel with family members of adolescent children on the autism spectrum
Cost: $25 for parents/guardians, $45 for professionals, $75 for professionals with continuing education credits* includes Resource CD, coffee, tea, and assorted beverages.   

* Continuing education credits in Psychology, Social Work, Nursing, and Act 48 are pending approval of appropriate boards.   

In order to keep costs low, lunch with NOT be provided. We ask that all participants pack and bring their lunch. Alternately, a light assortment of soups, sandwiches, and salads are available for purchase in the 16th floor cafeteria, and there are several lunch carts in front of the 3535 building.

Price does not include parking. For directions and parking options, please visit: http://www.centerforautismresearch.com/directions/directions_to_car   

To register online, please click the "Register Now" button below.

To register by mail, please click "Get more information." Then print, complete, and return the paper registration form, along with your $25, $45, or $75 check or money order. Checks may be made out to "The Children's Hospital of Philadelphia" with "Center for Autism Research" in the memo line.

Monday, March 5, 2012

Teen/Young Adult Group



Meetup
This Sunday

Teen/Young Adult Group currently functioning-looking for new members

ASCEND Group

Sunday, March 11, 2012
3:00 PM

Home of Nancy Kleinberg and David Loewenstein
506 Conshohocken State Rd
Narberth, PA 19072

Will you attend?
10 Parents of Children with Autism going, including:
I think this is a great way to meet other parents of children on the spectrum and...
I live in Narberth and Administer a Nursing Home. Have 3 kids. David is 19, bright,...
We are always looking for support in helping us do our best for our daughter who...
My son is 12 years old and has Asperger's Syndrome. He is very bright and friendly....
Have a teenage son with Asperger's and always looking for additional info/support/socialization...
Young people 17-23, parents welcome. Ongoing social group with various activities, such as Dave and Busters, a pool party, but mainly just getting together. Been meeting for about a year and a half. There's a core group, but new people are always...
Learn more

Mar
17
Buddy Club Bowling at 2:00 p.m.
Saturday, March 17, 2012 2:00 PM
RSVP
Mar
17
Buddy Club Bowling at 2:00 p.m.
Saturday, March 17, 2012 2:00 PM · 2 attending
RSVP
Apr
21
Buddy Club Bowling at 2:00 p.m.
Saturday, April 21, 2012 2:00 PM · 2 attending
RSVP

Sunday, March 4, 2012

Teen/Young Adult Group

New Meetup
ASCEND Group
Added by Nancy Kleinberg
Sunday, March 11, 2012
3:00 PM
Home of Nancy Kleinberg and David Loewenstein
506 Conshohocken State Rd
Narberth, PA 19072
Will you attend?
2 Parents of Children with Autism going, including:
I live in Narberth and Administer a Nursing Home. Have 3 kids. David is 19, bright,...
My son is 12 years old and has Asperger's Syndrome. He is very bright and friendly....
Young people 17-23, parents welcome. Ongoing social group with various activities, such as Dave and Busters, a pool party, but mainly just getting together. Been meeting for about a year and a half. There's a core group, but new people are always...
Learn more

Mar
17
Buddy Club Bowling at 2:00 p.m.
Saturday, March 17, 2012 2:00 PM · 3 attending
RSVP
Mar
17
Buddy Club Bowling at 2:00 p.m.
Saturday, March 17, 2012 2:00 PM · 2 attending
RSVP
Apr
21
Buddy Club Bowling at 2:00 p.m.
Saturday, April 21, 2012 2:00 PM · 2 attending
RSVP